Newborn screening programs rely on understanding the benefits and harms of screening, but the rarity of conditions hampers generation of high-quality data. The Early Check study, a partnership between North Carolina nonprofit, academic, and state organizations, is filling this gap by screening for conditions not included in standard newborn screening.
A North Carolina research partnership
Gehtland, L. M., & Bailey, D. B. (2019). Early check: A North Carolina research partnership. North Carolina Medical Journal, 80(1), 59-61. https://doi.org/10.18043/ncm.80.1.59