Don Bailey

Don Bailey, Ph.D. is a Distinguished Fellow at RTI International, where he is a member of RTI’s Genomics and Translational Research Center. Prior to joining RTI in 2006 he was on the faculty of the University of North Carolina at Chapel Hill, where he was a W.R. Kenan, Jr. Distinguished Professor and for 14 years Director of the Frank Porter Graham Child Development Institute. He has an extensive record of publications on a variety of topics related to disability, early identification, early intervention, newborn screening and family support. Currently, his work focuses on the future of newborn screening, having published several recent papers on how newborn screening can prepare for a future of new transformative treatments and genome sequencing. He is the senior science advisor for Early Check, a statewide research project to help prepare newborn screening for new conditions and new technologies, with a current focus on whole genome sequencing. He leads a project funded by the Health Resources and Services Administration (HRSA) to identify and develop ways to assess family outcomes of newborn screening. From 2011 – 2017 he served as a voting member on the U.S. Department of Health and Human Services Advisory Committee on Heritable Disorders in Newborns and Children. Currently he serves as an appointed member of the National Academy of Sciences, Engineering, and Medicine committee on Newborn Screening: Current Landscape and Future Directions.