Melissa Raspa

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Parents' opinions about using their children's EMR for research: A continuum of perspectives across three genetic groups

Family communication and cascade testing for Fragile X Syndrome

Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist-utility index

Aggression in fragile X syndrome

Caregiver Preferences for the Treatment of Males with Fragile X Syndrome

Mavoglurant in adolescents with fragile X syndrome: Analysis of clinical global impression-improvement source data from a double-blind therapeutic study followed by an open-label, long-term extension study

Autism symptoms across adulthood in men with Fragile X syndrome: A cross-sectional analysis

Examining parents' experiences and information needs regarding early identification of developmental delays: Qualitative research to inform a public health campaign

DSM-5 Changes and the Prevalence of Parent-Reported Autism Spectrum Symptoms in Fragile X Syndrome

Health and reproductive experiences of women with an <em>FMR1</em> premutation with and without fragile X premature ovarian insufficiency

Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

Modeling Family Adaptation to Fragile X Syndrome

Anxiety, attention problems, hyperactivity, and the aberrant behavior checklist in fragile x syndrome

Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

Caregiver Burden in Fragile X Syndrome As A Function of A Health State Utility Index in the United States

Therapy service use among individuals with fragile X syndrome: findings from a US parent survey

Therapy service use among individuals with fragile X syndrome: findings from a U.S. parent survey

Health and economic consequences of Fragile X syndrome for caregivers

Resource Utilization and Caregiver Burden Associated with Fragile X Syndrome in the United States