Don Bailey

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Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

The North Carolina experience with mucopolysaccharidosis type I newborn screening

Early check: Translational science at the intersection of public health and newborn screening

Early check: Studying the benefits of early detection and intervention

The future of newborn screening: Why and how partnerships will be needed for success

Early check: A North Carolina research partnership

Early identification of fragile X syndrome through expanded newborn screening

A digital health app to assess decisional capacity to provide informed consent: Protocol for a randomized controlled trial

Developmental trajectories of executive functions in young males with fragile X syndrome

Skills attained by infants with congenital Zika syndrome: Pilot data from Brazil

A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism

Evaluating parents' decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: A randomized controlled trial protocol

A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development

Early check: A voluntary newborn screening program and research registry to facilitate clinical trials in pre-symptomatic infants with rare diseases

Values clarification exercises improved parental decision making about newborn genomic sequencing

Decision making in couples offered genomic sequencing for newborn screening: Outcomes of a surrogate, joint decision

Parental preferences toward genomic sequencing for non-medically actionable conditions in children: A discrete-choice experiment

The likely impact of congenital zika syndrome on families: Considerations for family supports and services

The effects of optimism, religion, and hope on mood and anxiety disorders in women with the FMR1 premutation

Fragile X syndrome