• Journal Article

Personalized health care and health information technology policy: an exploratory analysis

Citation

Wald, J., & Shapiro, M. (2013). Personalized health care and health information technology policy: an exploratory analysis. Studies in Health Technology and Informatics, 192, 622-626. DOI: 10.3233/978-1-61499-289-9-622

Abstract

Personalized healthcare (PHC) is envisioned to enhance clinical practice decision-making using new genome-driven knowledge that tailors diagnosis, treatment, and prevention to the individual patient. In 2012, we conducted a focused environmental scan and informal interviews with fifteen experts to anticipate how PHC might impact health Information Technology (IT) policy in the United States. Findings indicatedthat PHC has a variable impact on current clinical practice, creates complex questions for providers, patients, and policy-makers, and will require a robust health IT infrastructure with advanced data architecture, clinical decision support, provider workflow tools, and re-use of clinical data for research. A number of health IT challenge areas were identified, along with five policy areas including: interoperable clinical decision support, standards for patient values and preferences, patient engagement, data transparency, and robust privacy and security