Anne Wheeler

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Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

Factor structure of the aberrant behavior checklist in individuals with fragile X syndrome: Clarifications and future guidance

Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review

Developmental outcomes among young children with congenital Zika syndrome in Brazil

Decisional capacity for informed consent in males and females with fragile X syndrome

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record

Food and non-food-related behavior across settings in children with Prader-Willi syndrome

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

Communication of clinical uncertainties: A systematic literature review

Anxiety-associated and separation distress-associated behaviours in Angelman syndrome

Fragile X syndrome clinical trials: Exploring parental decision-making

Early check: Translational science at the intersection of public health and newborn screening

Infant temperament in the FMR1 premutation and fragile x syndrome

Health care for individuals with Fragile X Syndrome: Understanding access and quality

Early identification of fragile X syndrome through expanded newborn screening

A description of the educational setting among individuals with fragile x syndrome

A digital health app to assess decisional capacity to provide informed consent: Protocol for a randomized controlled trial

Mindfulness and acceptance as potential protective factors for mothers of children with fragile X syndrome

Mobile technology use and skills among individuals with fragile X syndrome: Implications for healthcare decision making

Sensory difficulties in children with an FMR1 premutation