Supporting family adaptation to pre-symptomatic and "untreatable" conditions in an era of expanded newborn screening

Bailey, D., Armstrong, D., Kemper, A., Skinner, D., & Warren, S. (2009). Supporting family adaptation to pre-symptomatic and "untreatable" conditions in an era of expanded newborn screening. Journal of Pediatric Psychology, 34(6), 648 - 661.

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