Resource Utilization and Caregiver Burden Associated with Fragile X Syndrome in the United States

Bailey, D., Kick, M., Mitra, D., & Sacco, P. (2012). Resource Utilization and Caregiver Burden Associated with Fragile X Syndrome in the United States. Value in Health, 15(4), A146-A146. https://doi.org/10.1016/j.jval.2012.03.788

Abstract

To assess the nature and extent of burden experienced by caregivers of patients with Fragile X Syndrome (FXS) in the United States (US).

Publications Info

To contact an RTI author, request a report, or for additional information about publications by our experts, send us your request.

Recent Publications

Article

The use of patient experience feedback in rehabilitation quality improvement and codesign activities
Article

Protection of forest ecosystems in the eastern United States from elevated atmospheric deposition of sulfur and nitrogen
Article

SPTSSA variants alter sphingolipid synthesis and cause a complex hereditary spastic paraplegia
OCCASIONAL PAPER

Bringing an equity-centered framework to research