Early intervention services for young boys with Fragile X syndrome
Hatton, D. D., Bailey, D., Roberts, J., Skinner, M., Mayhew, L., Clark, R. D., ... Roberts, J. E. (2000). Early intervention services for young boys with Fragile X syndrome. Journal of Early Intervention, 23(4), 235-251. DOI: 10.1177/10538151000230040401
Investigated early intervention services for young males with fragile X syndrome. In the longitudinal study, 50 male neonates with fragile X syndrome were examined through the age of 6 yrs. Mothers (aged 23-48 yrs) and teachers provided information concerning service delivery; parents' satisfaction with services; early interventionists' perceptions of services needed; and the relationship between service intensity, developmental status, and demographic characteristics. Results show that early intervention started on average at 21.6 mo. There was a steady increase in the amount of early intervention across age periods. The intensity of speech-language and occupational therapies, however, remained constant. By the age of 60 mo, the number of children receiving physical therapy and the intensity of physical therapy both decreased. Although parents reported satisfaction with services, most said they would have preferred more services. Early interventionists and teachers seemed more concerned about behavior than cognitive delays. No statistically significant patterns emerged regarding the relationship between developmental status, service intensity, and demographic characteristics.