A qualitative study of the impact of Crohn's disease from a patient's perspective
Wilburn, J., Twiss, J., Kemp, K., & McKenna, S. P. (2016). A qualitative study of the impact of Crohn's disease from a patient's perspective. Frontline Gastroenterology, Advance Online Publication. DOI: 10.1136/flgastro-2015-100678
Thirty patients (60% female) aged 25–68 years were interviewed. Participants had experienced CD for between 2 and 40 years. Nearly 1300 statements relating to the impact of CD were identified. Thirteen main need themes were identified: nutrition, hygiene, continence, freedom from infection, security, self-esteem, role, attractiveness, relationships, intimacy, clear-mindedness, pleasure and autonomy. The findings from the interviews indicate that CD has a major impact on need-fulfilment. Such issues should be addressed in CD audit, clinical trials and when evaluating clinical practice.