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Don Bailey

Fellow Program Chair and Distinguished Fellow, Early Childhood Development

Don Bailey, PhD, is internationally known as an expert on young children with disabilities. For 27 years, he was on the faculty of the University of North Carolina at Chapel Hill where he was a W.R. Kenan, Jr. Distinguished Professor and, for 14 years, director of the Frank Porter Graham Child Development Institute. Dr. Bailey's research addresses early identification and early intervention for children with disabilities, as well as family adaptation to disability. For 20 years, his work has focused on children with fragile X syndrome, the leading inherited cause of intellectual impairment, and their families. He has an extensive record of publications, with more than 200 peer-reviewed articles, chapters, and books on a wide variety of topics related to early education, early intervention, disability, and family support. In 2006, Dr. Bailey received the Career Research Scientist Award from the Academy on Mental Retardation. From 2006 to 2009, he served as president of the board of directors of the National Fragile X Foundation ( Recently, he was appointed to serve a 4-year term on the DHHS Secretary's Advisory Committee on Heritable Disorders in Newborns and Children.


PhD, Early Childhood Special Education, University of Washington; MEd, Early Childhood Special Education, University of North Carolina at Chapel Hill; BA, Psychology, Davidson College.

Latest Publications

Wheeler, A.C., Mussey, J., Villagomez, A., Bishop, E., Raspa, M., Edwards, A., Bodfish, J., Bann, C., & Bailey, D.B. (2015). DSM-5 Changes and the Prevalence of Parent-Reported Autism Spectrum Symptoms in Fragile X Syndrome. Journal of autism and developmental disorders, 45 (3):816-829.
Ouyang, L., Grosse, S.D., Riley, C., Bolen, J., Bishop, E., Raspa, M., & Bailey, D.B. (2014). A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability. Research in Developmental Disabilities, 35 (7):1518-1527.
Wheeler, A.C., Bailey, D.B., Berry-Kravis, E., Greenberg, J., Losh, M., Mailick, M., et al. (2014). Associated features in females with an FMR1 premutation. J Neurodev Disord , 6 (1):30.
Bailey, D.B., Raspa, M., Wheeler, A., Edwards, A., Bishop, E., Bann, C., et al. (2014). Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome. Journal of Empirical Research on Human Research Ethics, 9 (3):18-28.
Poon, K.K., Ooi, N., Bull, R., & Bailey, D.B. (2014). Psychometric validation of the Family Outcome Survey-Revised in Singapore. Research in Developmental Disabilities, 35 (7):1534-1543.
View all publications by Don Bailey (223)