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Search Results

Showing results 21 to 40 of 41.

Article

Parents' opinions about using their children's EMR for research: A continuum of perspectives across three genetic groups

March 01, 2017
Event

APHA Annual Meeting 2018

November 11, 2018
Article

Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study

May 12, 2022
Article

Perceived healthcare provider reactions to patient and caregiver use of online health communities

September 01, 2014
Article

Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"

May 26, 2023
Article

Visual presentations of efficacy data in direct-to-consumer prescription drug print and television advertisements: A randomized study

May 01, 2016
Article

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

October 23, 2019
Article

A review on spinal muscular atrophy: Awareness, knowledge, and attitudes

October 01, 2016
Book

Science Literacy and Health Literacy Rationales, Definitions, and Measurement: Commissioned supplementary paper in support of the National Academies of Sciences, Engineering, and Medicine report "Science literacy: Concepts, contexts, and consequences"

January 01, 2016
Article

Program Implementation Approaches to Build and Sustain Health Care Coordination for Type 2 Diabetes

March 01, 2017
Article

Improving the implementation of diabetes self-management: Findings from the Alliance to Reduce Disparities in Diabetes.

July 01, 2014
Article

Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study

May 01, 2021
Article

Improving the implementation of diabetes self-management: Findings from the Alliance to Reduce Disparities in Diabetes

November 01, 2014
Article

Formative research to develop a clinical trial decision aid that integrates quantitative patient preference data

May 01, 2020
Article

Presenting efficacy information in direct-to-consumer prescription drug advertisements

May 01, 2014
Article

Assessing patient-provider communication barriers to implementing new expert panel risk reduction guidelines

October 01, 2014
Article

Peer-generated health information: The role of online communities in patient and caregiver health decisions

November 02, 2016
Article

Barriers and facilitators to genetic service delivery models: Scoping review

February 25, 2021
Article

Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review

May 21, 2020
Article

Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition

December 01, 2020