Search Results
Showing results 1 to 20 of 39.
Article
Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"
April 01, 2024
Article
Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes
June 01, 2023
Article
Benefit-risk preferences of patients for the use of artificial intelligence and ultrasound imaging in different settings in echocardiography
June 01, 2023
Article
Managing uncertainty and responding to difficult emotions: Cancer patients’ perspectives on clinician response during the COVID-19 pandemic
July 01, 2022
Article
Oncology patients' communication experiences during COVID-19: Comparing telehealth consultations to in-person visits
June 01, 2022
Article
Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study
May 12, 2022
Article
Patients' experiences with cancer care: Impact of the COVID-19 pandemic
April 01, 2022
Article
Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study
May 01, 2021
Article
Barriers and facilitators to genetic service delivery models: Scoping review
February 25, 2021
Article
Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition
December 01, 2020
Article
Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder
October 01, 2020
Article
Parental views on newborn next generation sequencing: Implications for decision support
July 01, 2020
Article
Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review
May 21, 2020
Article
Formative research to develop a clinical trial decision aid that integrates quantitative patient preference data
May 01, 2020
Article
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record
March 01, 2020
Article
Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability
October 23, 2019
RTI Press Publication
Making clinical trials more patient-centered using digital interactive e-consent tools
October 21, 2019
Article
Early check: Translational science at the intersection of public health and newborn screening
July 17, 2019
Article
Factors affecting the communication experiences of newly diagnosed colorectal cancer patients
September 01, 2018
Article
A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development
June 06, 2018