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Search Results

Showing results 1 to 20 of 39.

Article

Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"

April 01, 2024
Article

Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes

June 01, 2023
Article

Benefit-risk preferences of patients for the use of artificial intelligence and ultrasound imaging in different settings in echocardiography

June 01, 2023
Article

Managing uncertainty and responding to difficult emotions: Cancer patients’ perspectives on clinician response during the COVID-19 pandemic

July 01, 2022
Article

Oncology patients' communication experiences during COVID-19: Comparing telehealth consultations to in-person visits

June 01, 2022
Article

Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study

May 12, 2022
Article

Patients' experiences with cancer care: Impact of the COVID-19 pandemic

April 01, 2022
Article

Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study

May 01, 2021
Article

Barriers and facilitators to genetic service delivery models: Scoping review

February 25, 2021
Article

Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition

December 01, 2020
Article

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

October 01, 2020
Article

Parental views on newborn next generation sequencing: Implications for decision support

July 01, 2020
Article

Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review

May 21, 2020
Article

Formative research to develop a clinical trial decision aid that integrates quantitative patient preference data

May 01, 2020
Article

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record

March 01, 2020
Article

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

October 23, 2019
Cover image for publication: Making clinical trials more patient-centered using digital interactive e-consent tools
RTI Press Publication

Making clinical trials more patient-centered using digital interactive e-consent tools

October 21, 2019
Article

Early check: Translational science at the intersection of public health and newborn screening

July 17, 2019
Article

Factors affecting the communication experiences of newly diagnosed colorectal cancer patients

September 01, 2018
Article

A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development

June 06, 2018