Evolving Information Priorities of Hematologic Cancer Survivors, Caregivers, and Other Relatives
Gansler, T., Kepner, J., Willacy, E., Soloe, C., Rupert, D., Jarblum, M., Driscoll, D., Orr, W., Fitzgerald, T., & Esparza, A. (2010). Evolving Information Priorities of Hematologic Cancer Survivors, Caregivers, and Other Relatives. Journal of Cancer Education, 25(3), 302-311.
Little is known about information priorities of people touched by hematologic cancers. We interviewed and surveyed 29 survivors/patients, 13 caregivers, and 19 non-caregiver relatives. Qualitative interviews indicated limited information describing topics other than specific cancer subtypes and treatment options. The survey exercise revealed the following priorities: at diagnosis, cancer types and treatment options; during initial treatment, treatment options and coping with side effects; after treatment, follow-up tests and long-term side effects; at remission/during maintenance treatment at relapse, treatment options and follow-up tests; for patients, cancer types and treatment options; for caregivers, future outlook and support; for non-caregivers, finances. Information priorities vary by role and over time
