Quality and Processing of Employer-Generated Lists of Potential Registrants for the World Trade Center Health Registry
Meehan, A., & Dolan, M. (2004, May). Quality and Processing of Employer-Generated Lists of Potential Registrants for the World Trade Center Health Registry. Presented at International Field Directors and Technologies Conference, Phoenix, AZ.
The World Trade Center Health Registry is designed to assess the health effects of the World Trade Center (WTC) disaster of September 11, 2001. The Registry will follow participants to evaluate short and long term physical and mental health effects including those resulting from exposures to the dust, fumes, airborne particulates, on 9/11 and in the ensuing weeks as the fires burned. Persons who may enroll in the Registry include those who were in lower Manhattan on September 11, 2001; residents south of Canal Street; school children and staff enrolled in schools south of Canal Street; and persons involved in rescue, recovery, clean-up, and other work at the WTC site or Staten Island Recovery Operations between September 11, 2001 and June 30, 2002.
An important component of the Registry involves the building of a list of those people most affected by the disaster. The World Trade Center Health Registry's list building effort recruited many businesses, government agencies, unions, non-profit organizations, and other groups with employees or members within a certain distance or who may have responded to the WTC site. These entities were asked to send lists of individuals who may be eligible to participate in the Registry. RTI provided detailed instructions to the entities of information to include, as well as different methods and formats in which the lists could be received. We will explore advances in technology that allow flexibility in a list building effort and reduce effort for participating organizations, in addition to assuring confidentiality of information provided. We will also compare the participation levels through electronic format versus paper format. Last, we will describe at the methods developed by the Registry team for preparing and processing the variety of lists received in order to include all information provided by organizations.