Evolving Information Priorities of Hematologic Cancer Survivors, Caregivers, and Other Relatives
Little is known about information priorities of people touched by hematologic cancers. We interviewed and surveyed 29 survivors/patients, 13 caregivers, and 19 non-caregiver relatives. Qualitative interviews indicated limited information describing topics other than specific cancer subtypes and treatment options. The survey exercise revealed the following priorities: at diagnosis, cancer types and treatment options; during initial treatment, treatment options and coping with side effects; after treatment, follow-up tests and long-term side effects; at remission/during maintenance treatment at relapse, treatment options and follow-up tests; for patients, cancer types and treatment options; for caregivers, future outlook and support; for non-caregivers, finances. Information priorities vary by role and over time
Gansler, T., Kepner, J., Willacy, E., Soloe, C., Rupert, D., Jarblum, M., ... Esparza, A. (2010). Evolving Information Priorities of Hematologic Cancer Survivors, Caregivers, and Other Relatives. Journal of Cancer Education, 25(3), 302-311.