Consensus-based framework for evaluating data modernization initiatives
The case of cancer registration and electronic reporting
Subramanian, S., Tangka, F. K. L., Pordell, P., Beizer, J., Wilson, R., Jones, S. F., Rogers, J. D., Benard, V. B., & Richardson, L. C. (2023). Consensus-based framework for evaluating data modernization initiatives: The case of cancer registration and electronic reporting. JAMIA Open, 6(3), Article ooad060. https://doi.org/10.1093/jamiaopen/ooad060
As part of its data modernization initiative (DMI), the Centers for Disease Control and Prevention, Division of Cancer Prevention and Control is testing and implementing innovative solutions to improve cancer surveillance data quality and timeliness. We describe a consensus-based effort to create a framework to guide the evaluation of cancer surveillance modernization efforts by addressing specific context, processes, and costs related to cancer registration. We drew on prior theories, consulted with experts, and sought feedback from cancer registry staff. We developed the cancer surveillance systems, context, outcomes, and process evaluation (CS-SCOPE) framework to explain the ways in which cancer registry data quality, timeliness, and efficiency are impacted by external and internal contextual factors and interrelated process and content factors. The framework includes implementation measures to understand acceptability of process changes along with outcome measures to assess DMI initiation and ongoing sustainability. The framework's components and structures can be tailored for use in other DMI evaluations.