Publications Related to "Carol M. Hamilton"


Standard measures for sickle cell disease research

Standard measures and common data elements for sickle cell disease (SCD) will improve the data quality and comparability necessary for cross-study analyses and the development of guidelines that support effective treatments and interventions. In...


Research standardization tools

Only through concerted and well-executed research endeavors can we gain the requisite knowledge to advance pregnancy care and have a positive impact on maternal and newborn health. Yet the heterogeneity inherent in individual studies limits our...


PhenX measures for phenotyping rare genetic conditions

Introduction: The PhenX Toolkit, an online resource of well-established measures of phenotypes and exposures, now has 16 new measures recommended for assessing rare genetic conditions. Materials and Methods: These measures and their...


Using the PhenX Toolkit to Add Standard Measures to a Study

The PhenX (consensus measures for Phenotypes and eXposures) Toolkit ( offers high-quality, well-established measures of phenotypes and exposures for use by the scientific community. The goal is to promote the use of...