Search results related to Barbara Biesecker

Showing results 1-25 of 173.

Article

Managing the need to tell

Triggers and strategic disclosure of thalassemia major in Singapore
May 2019
Article

Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy

June 2019
Article

Decision role preferences for return of results from genome sequencing amongst young breast cancer patients

January 2019
Article

The psychological well-being of pregnant women undergoing prenatal testing and screening

A narrative literature review
May 2019
Article

High levels of interest in reproductive genetic information in parents of children and adults with hirschsprung disease

September 2019
Article

Challenges to informed consent for exome sequencing

A best-worst scaling experiment
September 2019
Article

Fragile X syndrome clinical trials

Exploring parental decision-making
August 2019
Article

Psychological and parental functioning of widowed fathers

The first two years
August 2019
Article

The genomic medicine integrative research framework

A conceptual framework for conducting genomic medicine research
June 2019
Article

Communicating clinical uncertainties and implications for genomics

March 2019
Article

Early check

Translational science at the intersection of public health and newborn screening
July 2019
Article

Genetic counseling, genetic testing, and risk perceptions for breast and colorectal cancer

Results from the 2015 National Health Interview Survey
June 2019
Article

Psychological outcomes related to exome and genome sequencing result disclosure

A meta-analysis of seven clinical sequencing exploratory research (CSER) consortium studies
June 2019
Article

Noninvasive prenatal whole genome sequencing

Pregnant women's views and preferences
March 2019
Article

Communication of clinical uncertainties

A systematic literature review
October 2019
Article

Genetic counseling and the central tenets of practice

September 2019
Article

Patient perspectives on molecular tumor profiling

"Why wouldn't you?"
July 2019
OCCASIONAL PAPER

Making clinical trials more patient-centered using digital interactive e-consent tools

October 2019
Article

Who should access Germline Genome Sequencing?

A mixed methods study of patient views
November 2019
Article

Factors affecting breast cancer patients' need for genetic risk information

From information insufficiency to information need
June 2019
Article

World congress on genetic counselling

May 2019
Book

Advanced genetic counseling theory and practice

October 2019
Article

A primer in genomics for social and behavioral investigators

February 2019
Article

Knowledge, motivations, expectations, and traits of an African, African-American, and Afro-Caribbean sequencing cohort and comparisons to the original ClinSeq® cohort

June 2019
Article

Young cancerpatient perspectives on undertaking whole genome sequencing

A qualitative study
July 2019

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