Don Bailey

Expertise

Early Intervention and Early Education Programs
Children with Disabilities
Newborn Screening for Genetic Disorders
Family Adaptation to Disability

Biography

Don Bailey talks about his research on children with Fragile X syndrome

Don Bailey discusses his research on Fragile X syndrome

Don Bailey, PhD, Distinguished Fellow in early childhood development, appointed November 2005, is internationally known as an expert on young children with disabilities, with a particular emphasis on their families and the role of early intervention. Before coming to RTI, Bailey was W. R. Kenan, Jr. Distinguished Professor at the University of North Carolina at Chapel Hill, and from 1992 to 2006 director of the Frank Porter Graham Child Development Institute. His studies have focused on a genetic disorder called "fragile X syndrome" and the role of newborn screening and early intervention in helping children function with this condition. He has authored or coauthored more than nine books, 30 book chapters, and 138 peer-reviewed articles. Bailey has received the 2004 Rosen Award for Outstanding Research in Fragile X Syndrome from the National Fragile X Foundation, and the 2006 Career Research Scientist Award from the Academy on Mental Retardation. He currently serves as President of the National Fragile X Foundation.

Education

PhD, Early Childhood Special Education, University of Washington; MEd, Early Childhood Special Education, University of North Carolina at Chapel Hill; BA, Psychology, Davidson College.

Selected Publications

Bailey, D.B., Raspa, M., Olmsted, M., & Holiday, D.B. (2008 Aug 15). Co-occurring conditions associated with FMR1 gene variations: findings from a national parent survey. American Journal of Medical Genetics. Part A, 146A (16):2060-2069.

Bailey, D.B., Sideris, J., Roberts, J., & Hatton, D. (2008 Mar 15). Child and genetic variables associated with maternal adaptation to fragile X syndrome: a multidimensional analysis. American Journal of Medical Genetics. Part A, 146 (6):720-729.

Bailey, D.B., Skinner, D., Davis, A.M., Whitmarsh, I., & Powell, C. (2008 Mar). Ethical, legal, and social concerns about expanded newborn screening: fragile X syndrome as a prototype for emerging issues. Pediatrics, 121 (3):e693-e704.

Bailey, D.B., Armstrong, F.D., Kemper, A.R., Skinner, D., & Warren, S.F. (2008). Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening. Journal of Pediatric Psychology, 34 (6):648-661.

Bailey, D.B., & Gariepy, J.L. (2008). Critical periods. In M.M. Haith, & J.B. Benson (Ed.), Encyclopedia of Infant and Early Childhood Development. San Diego, CA: Academic Press.

Bailey, D.B., Golden, R.N., Roberts, J., & Ford, A. (Nov 2007). Maternal depression and developmental disability: Research critique(D.B. Bailey, Ed.). Mental Retardation and Developmental Disabilities Research Reviews (D.B. Bailey, Ed.), 13 (4):321-329.

Bailey, D.B., Nelson, L., Hebbeler, K., & Spiker, D. (2007 Oct). Modeling the impact of formal and informal supports for young children with disabilities and their families. Pediatrics, 120 (4):e992-1001.

Bailey, D.B., Beskow, L.M., Davis, A.M., & Skinner, D. (Dec 2006). Changing perspectives on the benefits of newborn screening. Mental Retardation and Developmental Disabilities Research Reviews, 12 (4):270-279.

Bailey, D.B., Bruder, M.B., Hebbeler, K., Carta, J., Defosset, M., Greenwood, C., Kahn, L., Mallik, S., Markowitz, J., Spiker, D., Walker, D., & Barton, L. (2006). Recommended outcomes for families of young children with disabilities. Journal of Early Intervention, 28 (4):227-251.

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